Mya

I’m not exactly sure how to best communicate this, so I will do my best. We had an extremely difficult afternoon today. We met with the staff physician of the Sick Kids NICU regarding Mya’s situation. We went into this meeting with a lot of confusion as we had received vastly different information from different doctors. The doctor quickly put everything back into perspective, and basically, Mya does have PVL.

Factoring in the quality of life Mya will have with PVL, and the tedious pain and suffering she will endure throughout the multiple heart surgeries (in which the doctors are not very confident that she can even survive), Lindsay and I (along with the recommendation of the doctors) have made a very emotional decision to pursue a non-aggressive treatment approach going forward.

What this will mean is that both girls are being transported back to London tomorrow (2 separate medical teams in 2 different ambulances). They will be at St. Joe’s, which will allow us to be in a more comfortable surrounding closer to home and with both girls together. We will use this opportunity to have a professional photographer come in for some family portraits, have the babies baptized, and allow for some visiting time. When we are ready, we will have the CPAP removed from Mya and taken off the heart medication, and allow nature to take its course. Once this happens, we have been given anywhere from hours to several days.

We will communicate on here when the best time will be for people to visit. If you can hold off on phone calls tonight, that would be greatly appreciated. Thank you for understanding.

-Craig & Lindsay