Update

Hi,

I know it has been quite a few days since we have last updated the blog, however, we are on limited internet access since Lindsay has been discharged from the hospital.

For some updates: Alyssa is simply thriving. She has gone from 2ml of breast milk every 3 hours to 10 ml every 2!! She has her Daddy's appetite!

As for Mya, we had a very emotional day yesterday. Some doctors from the NICU team at Sick Kids came down to talk to us. They took us into a private room, and shared with us the results of a brain scan they did on her the previous day. The doctors unfortunately did not have very good news to share with us. She has two major issues. The first is a Bilateral Intraventricular Hemorrage, and the other is a Periventricular Leukomalacia. As we are still trying to get a good grasp on exactly what these things are, I would suggest you take the time to research it yourself as it is very difficult to explain. The doctors told us that she can't tell us not to be concerned about these issues, because they are very serious concerns. While we have to wait until they do another brain scan next week before some more difficult conversations are held, what we got from them is Mya is very likely not just going to have vision problems, or hearing problems, she is likely going to have the whole bag of tricks - a loss of vision, hearing, speech, motor functions...

This has been difficult news for us to deal with and come to terms with, but we are getting better each day. Another thing they have thrown out there is the big heart surgery that Mya is working towards is also very likely going to worsen her brain issues.

We will update with more when we have more concrete information. Until then, the most we can ask from anyone is to include Mya in their prayers each night.

Thanks all,

-Craig